Apparent risks of postural orthostatic tachycardia syndrome diagnoses after COVID-19 vaccination and SARS-Cov-2 Infection

RT @theinvisible81: I’m pro vaccine but #Pfizer booster made my #POTS & #MEcfs 10x worse. Was terrifying. I’m lucky to have a Dr help me ba…

@imdrped @shanbwdn @Michael88015265 @pwleaks https://t.co/OFi0tU28HH

@PeterOttavio @TardyYort @BillAckman @RobertKennedyJr Because we will never be patients in critical care. That's not where we go. Most of us first went to neurology after primary. The neuro side effects are being ignored even with large studies. https://t.

@gpanger @loscharlos @HHSGov Strongest data exists for POTS, one of the syndromic outcomes of LC https://t.co/aRvIavixiA

@tylerblack32 @mindpsience This 'of course' is where you're going too far. What data do you have? Outcomes that are most common in younger folks may be *inverse* to antigen load. For instance ME & POTS (50x rate of myo btw!👇🏽) occur from mild cases. h

@gorskon @tenebra99 @SFMom8 @MaceMoneta What do you consider "rare"? A rare disease in the US is defined as less than 1/1500. Obviously, not every health problem is vaccine related, but there is evidence of dysautonomia and POTS. I get that it's twitter, b

@Food4ears @Smanski63 @floydjonesmusic @Lisawesterveld e.v.a.. maar dat wist je zelf ook wel. De respons weten we ook: pfff..deze sites? (onbetrouwbaar NPS veel beter) https://t.co/Udv0hJUKif https://t.co/ibWvGk19lt https://t.co/unUex80Pel https://t.co

RT @esteramyfischer: @TheNewNZ911 @PeterHotez @PeterHotez Me: POTS. Disabled for over 2 years from my Pfizer vaccination. It's in my chart…

RT @esteramyfischer: @TheNewNZ911 @PeterHotez @PeterHotez Me: POTS. Disabled for over 2 years from my Pfizer vaccination. It's in my chart…

This Nature paper examined the rates of POTS, one of many disorders classified under the 'long covid' umbrella, and they found that rates of POTS is about 1/1000 in vaccinated individuals (there are more conclusions but this is just the one I focused on)

@TheNewNZ911 @PeterHotez @PeterHotez Me: POTS. Disabled for over 2 years from my Pfizer vaccination. It's in my chart and reported to VAERS. https://t.co/GvcbrWZPTe

@LizHighleyman Well said. Science can also tell us if X % of younger (mostly) women may develop dysautonomia from either. Nasty surprise: 10-50x that of myocarditis. I don't envy making policy from this data, but the data is the data & leaders need to

RT @vijayiyer312: @JeromeAdamsMD Dr. Adams, agree on #1 & most of #2. Wrt #3, my concern is that low risk folks appear to be at elevated…

RT @vijayiyer312: @anish_koka Same (undercounting) goes for POTS, which appears to occur 10-50x as much as myocarditis. Needs more attentio…

RT @vijayiyer312: @anish_koka Same (undercounting) goes for POTS, which appears to occur 10-50x as much as myocarditis. Needs more attentio…

@anish_koka Same (undercounting) goes for POTS, which appears to occur 10-50x as much as myocarditis. Needs more attention! https://t.co/60wlHKVM5J.

@JeromeAdamsMD Dr. Adams, agree on #1 & most of #2. Wrt #3, my concern is that low risk folks appear to be at elevated risk for at least 1 condition that only got due consideration (ICD code) in Oct 2022. So the calculus may be changing & more co

@MacGraeme42 @EerjkMcRaeOF @mysteriouskat @elonmusk @PeterHotez Issue is when adverse affects are selective for younger folks who are (much) less at risk of death. This is true not just for myocarditis (very rare) but also for POTS/dysautonomia (much less

@MacGraeme42 @mysteriouskat @elonmusk @PeterHotez Many adverse effects of vax are chronic. Yet there have been near zero compensation claims approved. That's denial by public health for practical purposes! They CYA because @dysautonomia (likely most common

@elonmusk @PeterHotez Agree issue at hand is excess vaccination. Not sure debate between 'vax without borders' & 'vax causes autism' yields insights. More insightful: some of us are 'immunodivergent', i.e., vulnerable to *both* vax & virus. Can u s

@cstroeckw @AriDavidPaul @joerogan @Tempi_Stiftung Adding to Christoph's point: a significant fraction of the vax adverse events (a hot topic for this imaginary debate!) are also likely related to an #mecfs and/or #dysautonomia type pathology. Better to fu

RT @vijayiyer312: @BallouxFrancois And, at worst: the small risks were larger than the smaller reward. Myocarditis (the most ballyhooed exa…

@BallouxFrancois And, at worst: the small risks were larger than the smaller reward. Myocarditis (the most ballyhooed example) is quite rare, but POTS may be 10-50x more common; it likewise strikes young/healthy predominantly. https://t.co/aRvIavixiA

RT @balaganista: @isuckatwife I reported to VAERs myself. Even as my doctors told me not to get any more Covid shots, not one reported my A…

@mrsflower70 @MariaKostiander @v_virpi @Y59info @POhukainen @jure_fi Fimea kyllä julkaisee suht perusteellisia erittelyjä haittaepäily-ilmoitusten määristä, viimeksi pari viikkoa sitten. Onko tuosta POTSista tullut jotain uutta tän jälkeen? Tässähän todett

@kevinnbass POTS is a key type of chronic Long Covid, not assessed by this study. Are you claiming heart-rate increases upon standing are psychological? https://t.co/aRvIavixiA

@BallouxFrancois @gadboit I consider 0.1% for an often chronic condition (as measured for C19vax for POTS👇🏽, no comparable dataset for HPV afaik) to be a pretty extraordinary rate. https://t.co/aRvIavixiA

RT @KrugAlli: Fantastic critical review of this paper, including a brief video explaining how an incorrect odds ratio was reported plus wha…

Fantastic critical review of this paper, including a brief video explaining how an incorrect odds ratio was reported plus what the correct odds ratio should be.

@gadboit @vijayiyer312 @KrugAlli You may be interested in this thread about the study and comparative rates. I’d be interested in your thoughts. https://t.co/wPRGC1EbOg

@KrugAlli Agree the nexus of autonomic dysfunction & 'Long X' appears strong. Including one large dataset since last winter 👇🏽. Whether this apparent association is causation, unmasking, or something else remains a good question TBD. https://t.co/aRvIa

RT @jazz_police: Much has been made of the recent article by @alanckwan in @NatureCVR regarding the increased risk of #POTS after both COVI…

@angryhacademic @DrMark_Faghy @visible_health @BIOREMEnet @BinitaKane @REvans_Breathe @DCHStrust @SessionsTlc @long_covid @LongCOVIDPhysio @LC_UK_Action @LongCovidKids @RecoveryCovid19 @WeHCScientists As Harriet's query suggests, including post-vax cases c

@paz_fey @ReneeCapo80 @MegWingerter https://t.co/wj130CdrNQ https://t.co/jBpfuPw8Fp https://t.co/Cnw4iiJUgl https://t.co/1a8c7ROu5E https://t.co/sYzjD3cCE8 https://t.co/hSB8606LCd https://t.co/smuGTIY2aL https://t.co/vrhauEcjTu https://t.co/xe5Xb67vVg

@GidMK I'm still curious to know why there's so much focus on this rare event, versus the much more frequent issue (~50x) of dysautonomia? As a health nerd, this would give you a lot more satisfying statistics to chew on. https://t.co/aRvIavixiA

@plej_a @WahnSager @oiramztem @FeuerruepelLP @SHomburg @rki_de https://t.co/ma3yz6hYDN Nochmal du Clown: DU HAST KEINE DATEN sondern SCHLAGZEILEN! https://t.co/EsojZmQv1Z

RT @gorka_orive: Riesgo aparente de síndrome de taquicardia ortostática postural tras infección por coronavirus y también tras vacunación (…

RT @vijayiyer312: @ReginaWatteel @AVoineskos Regarding #2, the answer is a combination of both. For at least one common form of Long Covid…

RT @vijayiyer312: @ReginaWatteel @AVoineskos Regarding #2, the answer is a combination of both. For at least one common form of Long Covid…

@ReginaWatteel @AVoineskos Regarding #2, the answer is a combination of both. For at least one common form of Long Covid -- POTS/dysautonomia -- this has now been studied at scale. https://t.co/aRvIavixiA

@TracyBethHoeg I recommend uniting the country by speaking to the challenges of understanding and addressing adverse effects of *both* vaccines and virus which affect select younger men and (more!) women. https://t.co/aRvIavixiA

@RepNancyMace Could we use it to help the (mostly) women battling POTS and other dysautonomias after *either* Covid or the vax? Irregular tachycardia 💓may not be a life or death emergency, but it can be/become debilitating & can be progressive. https:

@microbeminded2 @RenzPolster @angryhacademic @ClausErnst @polybioRF @fullarton_sarah @DrGrahamLJ I'm an intermediary funding-wise. Let me explore! Regarding evidence towards HHV, I think Harriet's call to consider post-vac cases is key. If one peels away d

@kevinnbass But you seem to be anti-women! You keep sticking up for young men (good), but won't say a peep about young women whose top adverse outcome (likely POTS) from vax occurs at 50x the rate of myo. Seriously, just look at Tables 1 & 2, and igno

@anish_koka I tend to agree re mandates. But can you explain why you focus on only the risks for young men, when the rate of the adverse outcome most common for young women was found to be 50x higher? https://t.co/aRvIavixiA

@StevePhillipsMD @UofCalifornia I tend to agree. Not sure @DrJBhattacharya is a credible voice to make the case. Strongest argument imo for @UofCalifornia to rethink: vax may causally drive some forms of #longcovid, particularly varieties affecting young

RT @EricTopol: Postural orthostatic tachycardia syndrome (POTS) can occur after Covid and in the 90-day period following vaccination. It is…

@DidacticaStar @Marshal42872924 @AlexBerenson Same results are happening (in vulnerable folks) from vax *and* virus. We can't believe effects from one & mock those from other. https://t.co/aRvIavixiA

@ValeBodi @zeynep @Dysautonomia Sure thing: https://t.co/aRvIavixiA

@LexsWorld @WesElyMD @DrEricDing Yes some may have an adverse vaccine reaction. A few of us are connecting dots: same basd outcomes can arise from both👇🏽. But hard to have conversation when you'll say it's mental if from virus but real if from vax. Let's t

@KevinBardosh @KrugAlli @ID_ethics @TrudoLemmens @s_keshavjee @MartyMakary @sdbaral @TracyBethHoeg I tend to agree with your conclusion, but it's impossible to take you seriously if you keep ignoring the adverse outcome that arises 50x as often as myocardi

RT @NarfGb: 2/ Nice headline: Cardiac Testing at Washington Event Found 53% Myocarditis Rate https://t.co/n1Rd9z0bwd (deleted NARF!) ht…

2/ Nice headline: Cardiac Testing at Washington Event Found 53% Myocarditis Rate https://t.co/n1Rd9z0bwd (deleted NARF!) https://t.co/ZlJ5Jt9Pyh (1) https://t.co/jTWHWUjf1O (2) https://t.co/ma3yz6hYDN (3) https://t.co/oemyCvIctI (4) https://t.co/vEm

RT @MdJpn: 大腿骨骨折の緊急入院が急増中。高齢者は大腿骨頸部骨折で入院すると、認知症進行、フレイル、寝たきりになりやすい。衰弱性自立神経系障害＝姿勢起立性頻脈症候群も疑わないといけない。たしかに、突然脈が速くなると訴える患者にときどき遭遇する。これもC-VAD(コロワ…

RT @morilyn1123: コロナ感染や接種後にPOTS(体位性頻脈症候群: 起立時などに頻脈となり動悸やめまいが出現)が増加するという報告がありました。感染で2倍、接種で1.5倍。 https://t.co/FkMz245aJy 脳血流の低下を招きbrain fogと関…

RT @morilyn1123: コロナ感染や接種後にPOTS(体位性頻脈症候群: 起立時などに頻脈となり動悸やめまいが出現)が増加するという報告がありました。感染で2倍、接種で1.5倍。 https://t.co/FkMz245aJy 脳血流の低下を招きbrain fogと関…

RT @morilyn1123: POTSには副腎不全に起因するものもあるようです。低コルチゾールとlong COVIDの関連が言われていますが、もしかすると一元的にステロイド補充が有効かも知れない。マイルドに対処する場合、ステロイド作用を持つ甘草を多く含む漢方などが奏功するか…

RT @morilyn1123: コロナ感染や接種後にPOTS(体位性頻脈症候群: 起立時などに頻脈となり動悸やめまいが出現)が増加するという報告がありました。感染で2倍、接種で1.5倍。 https://t.co/FkMz245aJy 脳血流の低下を招きbrain fogと関…

@leashless @1goodtern Agreed. There are other heart irregularities with evidence that *both* virus & vax can lead to the same outcome. We need to start turning this into a scientific issue & major humanity challenge, not a moral or political footba

@cptndemocracy64 @dr_jon_l One form is tachycardia upon standing. Very clear! Shown to be triggered by either vax or virus. https://t.co/aRvIavixiA

RT @morilyn1123: コロナ感染や接種後にPOTS(体位性頻脈症候群: 起立時などに頻脈となり動悸やめまいが出現)が増加するという報告がありました。感染で2倍、接種で1.5倍。 https://t.co/FkMz245aJy 脳血流の低下を招きbrain fogと関…

@dfreedman7 I have no idea how often movement disorders arise, but we now have solid temporal association data on POTS, which is also oft wrongly considered psychological despite its clearly abnormal objective finding. Let's not be roundabout. We need big

@JohnMasonMSP @ScottAnd67 Member John, please digest this report regarding post vax POTS at a quite high rate. POTS is a condition that has only gotten a proper ICD code in Oct 2022. We’re flying more blind than many would care to admit. https://t.co/aRvIa

@hyloguy @jberube22 @FormerAntivax Injuries: https://t.co/YWrzncqbKW https://t.co/qO15Pn5EC7 https://t.co/p04dOEbvBp https://t.co/VtTx6RdKDz

@dathfarofa @PaulaMuller2022 @brushoXPTO @felipeneto @LulaOficial @AndreJanonesAdv @elonmusk https://t.co/s1NtcA9V7s Esse aqui é um estudo tá? mas vc não vai ler pq não sabe ingles

RT @vijayiyer312: @elisaperego78 @drclairetaylor @CovidSolidarit1 @1goodtern After seeing this data showing myocarditis happens 10-100x les…

@elisaperego78 @drclairetaylor @CovidSolidarit1 @1goodtern After seeing this data showing myocarditis happens 10-100x less than POTS, my bigger concern is we're under emphasizing chronic illness https://t.co/aRvIavixiA

@vvalkyri @michaelmina_lab @stewak2 @AdithyaR_YXE @BryanH0073 Yet it's far from clear that vax is a help for the 'syndromic' sequelae that tend to arise from minor/mild acute. In fact it may be just the opposite. https://t.co/aRvIavixiA

RT @EricTopol: Postural orthostatic tachycardia syndrome (POTS) can occur after Covid and in the 90-day period following vaccination. It is…

@cjmaddison @dsethlewis @BhupeshPrusty @ahandvanish @loscharlos In my ideal world, all conditions would be assessed for causality rigorously (as POTS was 👇🏽) & then further studied if shown. In real world, I see Long Covid community quite clustered ar

@angryhacademic That's why scientists do causal inference studies with large sample sizes & careful control of timeline. For instance this one with 200K+ medical records: https://t.co/aRvIavixiA https://t.co/kLhaf8M8hI

@robertwalker4 @AnnaSova17 @PostiesFF @AndrewKnack @ABDanielleSmith 3) But keep reading your articles from 2021 to make yourself feel better about taking part in a clinical trial with no long term data to back up its safety profile https://t.co/6BvygQqNze

RT @vijayiyer312: @elonmusk @EdKrassen @Dysautonomia Also: it's sometimes 💉 triggered. https://t.co/aRvIavixiA

RT @vijayiyer312: @elonmusk @EdKrassen @Dysautonomia Also: it's sometimes 💉 triggered. https://t.co/aRvIavixiA

@elonmusk @EdKrassen @Dysautonomia Also: it's sometimes 💉 triggered. https://t.co/aRvIavixiA

@LovelyT_31 I would share this paper & do the math on prevalence. Not rare! They reduced the time required to do temporal association, but still it anchors prevalence in the 1 in 1000 range. https://t.co/aRvIavixiA

@EatMyBreadd @stormchaseguide What's the basis for assuming the vax couldn't cause it to? For other outcomes examined closely, the answer is turning out to be *both* https://t.co/aRvIavixiA

@keepcalm_BetoOn @Cernovich @FrEdwardBeck @EricaRHill @jimsciutto @CNN https://t.co/xx8sHQCGPz Choose your poison

RT @vijayiyer312: @MikeDun00212873 @frandeebee Agree it's better to focus on specific outcomes. One adverse outcome is POTS which is quite…

@MikeDun00212873 @frandeebee Agree it's better to focus on specific outcomes. One adverse outcome is POTS which is quite objective (heart rate increases upon standing). That's been found to arise from either virus or vax. https://t.co/aRvIavixiA

@PatriotRealism @kevinnbass A lot of it is POTS which is objectively real:: heart rate increases upon standing. That's been found to arise after vax or virus. https://t.co/aRvIavixiA

RT @MdJpn: 大腿骨骨折の緊急入院が急増中。高齢者は大腿骨頸部骨折で入院すると、認知症進行、フレイル、寝たきりになりやすい。衰弱性自立神経系障害＝姿勢起立性頻脈症候群も疑わないといけない。たしかに、突然脈が速くなると訴える患者にときどき遭遇する。これもC-VAD(コロワ…

RT @vijayiyer312: https://t.co/aRvIavixiA

https://t.co/aRvIavixiA

@LibertyCappy Best data for one adverse outcome shows that *both* vax and virus can cause it. It's prob the same at risk population. Let's stop the culture wars and solve the real problem. https://t.co/aRvIavixiA

@Dulce4Progress @loscharlos @Bethenny I'm curious how she seemed to be anti-vax? If it was just stating that POTS (what she has) is a possible adverse outcome of the vax, that's now pretty well established. https://t.co/aRvIavixiA

@ChanceBGardener @aftab_usa Sorry to hear about your #postvac syndrome case. You.are not alone. It's hard to know how many of us there are when neither vax supporters nor antivax folk want to acknowledge syndrome cases. At least we now have significant dat

There is literally a large population level study comparing POTS after COVID and POTS after COVID vaccines. That Vance chose not to discuss this study is squarely his fault. https://t.co/32NM3RQnFW

@anettefri @sophieloehde @FranciskaRosenk @pederhvelplund Myocarditis does happen albeit less often in women. This dataset broke it down. https://t.co/aRvIavixiA

@rachelschraer Apparent risks of postural orthostatic tachycardia syndrome (POTS) diagnoses after COVID-19 vaccination and SARS-Cov-2 Infection https://t.co/xTl66WSqt4

@vijayiyer312 @D_Bone & here's the correct mathematical analysis for the article ❤️ https://t.co/x4sOFePi4W

@D_Bone Imo the best approach is to stay anchored by data, especially now that there's a substantial dataset for at least one common outcome between the postvac & LC populations👇🏽. This scares off anti-vaxxers & conspiracy folks. https://t.co/aRvIa

@PaulGlasziou Not to take anything away from Bell's Palsy sufferers, but I think POTS is actually a more common and very debilitating outcome and is still not being recognized. https://t.co/U4JYeI5OKi

Oh, yeah turns out I have POTS. A year ago a cardiologist said, "this is dysautonomia" and prescribed blood pressure medicine but I'd been waiting to see a specialist w/dysautonomia experience and anyway it is obviously, classically POTS. https://t.co/ug

@kevinnbass Congrats on being a girl dad! If you want to head off unnecessary mental health dxs in (mostly) younger women including girls, join the fight to solve #POTS which for years has been dismissed as anxiety by inept docs. Your gen will do better! h

@loscharlos I hear you. At same time, I wonder why LC advocates aren't making more of this data which *did* find high rates in EHR data (being in a system that is POTS aware). https://t.co/aRvIavixiA

@kradmacher @dr_jon_l @ClareCraigPath This data suggests closer to 1 in 1000 for at least one serious outcome. https://t.co/aRvIavixiA

@anti_disease @dr_jon_l @ClareCraigPath There's a good study of one outcome, POTS (which has objective signs) https://t.co/aRvIavixiA

@johnkriby1 @dr_jon_l @ClareCraigPath I think spike has to be a candidate. There are some outcomes that seem primarily associated with mild cases, low dose does not make vax pathway unlikely. For one outcome 👇🏽, temporal association of both pathways has be

@Edwina_Currie https://t.co/GnZNiSAm3s