@introspection @celyagd @Calimaq @Sagebio So we often do regular consent but also offer an extra option of participant-chosen open sharing, to what we call "qualified researchers" - see https://t.co/wwaEKMNtwr
RT @markgerstein: .@BrianMBot cites "First, design for data sharing" https://t.co/E6gAeRtyvL Argues data sharing shouldn't be an afterthoug…
RT @markgerstein: .@BrianMBot cites "First, design for data sharing" https://t.co/E6gAeRtyvL Argues data sharing shouldn't be an afterthoug…
.@BrianMBot cites "First, design for data sharing" https://t.co/E6gAeRtyvL Argues data sharing shouldn't be an afterthought #GPwrite
@nature DOI finder hickup: https://t.co/apULG18FlL leads to https://t.co/LehjqsJotW and not to its paper https://t.co/eymPWJZP5S
@eramirez @agaricus @LaraMangravite @ScientificData @wilbanks @MegDoerr Also, high level overview of our data sharing philosophy in mobile space is explained here: https://t.co/805tH5InDI
@NatureBiotech @Crossref Any idea why the DOI stated at https://t.co/eymPWJZP5S does not lead to the article: https://t.co/xNeLaTNVrk ?
Updated link https://t.co/b1hgxuS0cd to this excellent article https://t.co/VW3WgrnRpy
RT @kerfors: Re-reading @wilbanks's and Friend's excellent article https://t.co/TO9hpewMZJ The concept of "qualified researchers" makes so…
Re-reading @wilbanks's and Friend's excellent article https://t.co/TO9hpewMZJ The concept of "qualified researchers" makes so much sense https://t.co/CoACXnYXgg
Hey @DrEkstrom, here's that article by @wilbanks I mentioned last night: https://t.co/MWRPAU2nD1 Related: https://t.co/3A5y3d1tJL
RT @MegDoerr: Why create more barriers to data sharing? Consider, "First, design for data sharing" https://t.co/QZ6UioXVE7 #GA4GH2016
RT @MegDoerr: Why create more barriers to data sharing? Consider, "First, design for data sharing" https://t.co/QZ6UioXVE7 #GA4GH2016
RT @MegDoerr: Why create more barriers to data sharing? Consider, "First, design for data sharing" https://t.co/QZ6UioXVE7 #GA4GH2016
Why create more barriers to data sharing? Consider, "First, design for data sharing" https://t.co/QZ6UioXVE7 #GA4GH2016
First, design for data sharing: https://t.co/oUi2jHvLJu Need framework that accounts for participant choices & qualifies researchers.
RT @carolinarossini: Stop privatization of data. Check these two Nature articles by my hubby @wilbanks Newest https://t.co/NbTGi2XbN1 & htt…
RT @carolinarossini: Stop privatization of data. Check these two Nature articles by my hubby @wilbanks Newest https://t.co/NbTGi2XbN1 & htt…
RT @carolinarossini: Stop privatization of data. Check these two Nature articles by my hubby @wilbanks Newest https://t.co/NbTGi2XbN1 & htt…
Stop privatization of data. Check these two Nature articles by my hubby @wilbanks Newest https://t.co/NbTGi2XbN1 & https://t.co/IoefpANwaG
RT @LussierY: First, design for data sharing https://t.co/LMe5CLHcA8 #precisionmedicine #Parkinsons
First, design for data sharing https://t.co/LMe5CLHcA8 #precisionmedicine #Parkinsons
Research participants should be seen as co-equals in research ecosystem by @wilbanks #bioethics #medicine #privacy https://t.co/SUXxvM95QE
RT @crodarte: Good read in Nature on mpower in parkinson's. First, design for data sharing https://t.co/7dTzv8MZY1 #digitalhealth https://t…
RT @JohnReites: First, design for data sharing with #mHealth #DigitalHealth https://t.co/fkCJB8r2dd https://t.co/n4zbvqN88G
First, design for data sharing with #mHealth #DigitalHealth https://t.co/fkCJB8r2dd https://t.co/n4zbvqN88G
RT @crodarte: Good read in Nature on mpower in parkinson's. First, design for data sharing https://t.co/7dTzv8MZY1 #digitalhealth https://t…
RT @JohnReites: First, design for data sharing with #mHealth #DigitalHealth https://t.co/DSrF92q4RD
RT First, design for data sharing with #mHealth #DigitalHealth https://t.co/Q6qBE4eDsp
First, design for data sharing with #mHealth #DigitalHealth https://t.co/DSrF92q4RD
RT First, design for data sharing with #mHealth #DigitalHealth https://t.co/GJrRV0BE1l
RT @JohnReites: First, design for data sharing with #mHealth #DigitalHealth https://t.co/RBpjrKbxAj
First, design for data sharing with #mHealth #DigitalHealth https://t.co/RBpjrKbxAj
RT RT First, design for data sharing with #mHealth #DigitalHealth https://t.co/blgfpWHp39
RT First, design for data sharing with #mHealth #DigitalHealth https://t.co/blgfpWHp39
RT First, design for data sharing with #mHealth #DigitalHealth https://t.co/yQgwTXd320
First, design for data sharing with #mHealth #DigitalHealth https://t.co/v4Jk6VLZvk
RT @JohnReites: First, design for data sharing with #mHealth #DigitalHealth https://t.co/5TU6VXgJ6z
First, design for data sharing with #mHealth #DigitalHealth https://t.co/5TU6VXgJ6z
RT @JohnReites: First, design for data sharing with #mHealth #DigitalHealth https://t.co/Ig115XpULZ
First, design for data sharing with #mHealth #DigitalHealth https://t.co/Ig115XpULZ
Sharing @wilbanks' excellent article with colleagues: First, design for data sharing #datasharing https://t.co/TO9hpewMZJ
RT @primrconnect: A commentary from @NatureBiotech on designing for #datasharing (pdf article): https://t.co/X6yKflpBD1
RT @primrconnect: A commentary from @NatureBiotech on designing for #datasharing (pdf article): https://t.co/X6yKflpBD1
RT @primrconnect: A commentary from @NatureBiotech on designing for #datasharing (pdf article): https://t.co/X6yKflpBD1
A commentary from @NatureBiotech on designing for #datasharing (pdf article): https://t.co/X6yKflpBD1
AT: Participants "often assume that their data will be distributed widely to… full research community" https://t.co/USPFlCiWpj #genetics16
"To upend current barriers to sharing clinical data and insights, we need a framework that not only accounts for ch… https://t.co/4uV6qZFLyJ
First, design for data sharing: @NatureBiotech https://t.co/tIeyvk1dG5
First, design for data sharing https://t.co/Ez6zXcv5Cd #Bioethics
RT @NTerpo: First, design for data sharing https://t.co/2VTaD999Ex
First, design for data sharing https://t.co/2VTaD999Ex
RT @l_trinquart: #clinicaltrial #datasharing framework acounting for #patient choices & qualifies researchers https://t.co/wtnQ6rF5yT @mehd…
RT @jannahutz: Love this data sharing commentary by @wilbanks &Friend @sagebio: https://t.co/fdgJsME43T More uptake of these policies=bette…
Love this data sharing commentary by @wilbanks &Friend @sagebio: https://t.co/fdgJsME43T More uptake of these policies=better drug discovery
wow @wilbanks breaks new ground re consent. informed, contextualizd, responsive, sharing incentives https://t.co/DDFXL1FS4G #responsibledata
RT @jessiet1023: First, design for data sharing https://t.co/6PMvQksE28 YES @wilbanks @stephen_friend #openAccess
First, design for data sharing by John Wilbanks https://t.co/UDGnYb4TVL
First, design for data sharing https://t.co/UcjZr9WABG
.@wilbanks @stephen_friend with more insight on data sharing system that is win-win for participants and researchers https://t.co/rP1qeElaNo
#clinicaltrial #datasharing framework acounting for #patient choices & qualifies researchers https://t.co/wtnQ6rF5yT @mehdi_benchoufi
First, design for data sharing https://t.co/LMpBhe1nFn
First, design for data sharing https://t.co/6PMvQksE28 YES @wilbanks @stephen_friend #openAccess
First, design for data sharing: https://t.co/yWknt5ziTK
Not all individuals demand #genomics #privacy: Use. https://t.co/TMqMaNuPLV @wilbanks #PM101 #precisionmedicine #OA https://t.co/ml8k3KKc51
Data sharing in clinical trials needs to support patient & researcher @wilbanks @Sagebio https://t.co/p96bNUSA6Z cc @bengoldacre
RT @NatureBiotech: First, design for #datasharing - @Sagebio https://t.co/6i9kxEq32D https://t.co/b7dYfsITy2
RT @NatureBiotech: First, design for #datasharing - @Sagebio https://t.co/6i9kxEq32D https://t.co/b7dYfsITy2
RT @NatureBiotech: First, design for #datasharing - @Sagebio https://t.co/6i9kxEq32D https://t.co/b7dYfsITy2
RT @NatureBiotech: First, design for #datasharing - @Sagebio https://t.co/6i9kxEq32D https://t.co/b7dYfsITy2
RT @NatureBiotech: First, design for #datasharing - @Sagebio https://t.co/6i9kxEq32D https://t.co/b7dYfsITy2
RT @NatureBiotech: First, design for #datasharing - @Sagebio https://t.co/6i9kxEq32D https://t.co/b7dYfsITy2
"we[researchers] have an ethical obligation to participants to maximize the scientific value of their data donation" https://t.co/9eRg5NTjDs
RT @NatureBiotech: First, design for #datasharing - @Sagebio https://t.co/6i9kxEq32D https://t.co/b7dYfsITy2
RT @NatureBiotech: First, design for #datasharing - @Sagebio https://t.co/6i9kxEq32D https://t.co/b7dYfsITy2
RT @CWolinetzNIH: Thoughtful article about data sharing: https://t.co/3N5xlTYz2D @nature #NIH #SciencePolicy #PMINetwork
RT @sparrowbarley: 'First, design for data sharing' by @johnwilbanks etal. Using a health app to give informed consent for data sharing htt…
RT @NatureBiotech: ICYMI, our commentary from @Sagebio: First, design for #datasharing https://t.co/6i9kxEHErd https://t.co/HgE669JyAm
RT @NatureBiotech: ICYMI, our commentary from @Sagebio: First, design for #datasharing https://t.co/6i9kxEHErd https://t.co/HgE669JyAm
ICYMI, our commentary from @Sagebio: First, design for #datasharing https://t.co/6i9kxEHErd https://t.co/HgE669JyAm
First, design for data sharing https://t.co/pB4nMwLqOq | https://t.co/m4OIzTIdU9
RT @NatureBiotech: First, design for #datasharing - @Sagebio https://t.co/6i9kxEq32D https://t.co/b7dYfsITy2
RT @NatureBiotech: First, design for #datasharing - @Sagebio https://t.co/6i9kxEq32D https://t.co/b7dYfsITy2
First, #design for #data #sharing https://t.co/vS6hfjU5v6
RT @Sagebio: We describe our concept of qualified researcher in a Nature Biotechnology comment, available today as #openaccess https://t.co…
First, design for data sharing https://t.co/GWxWXFzRjR #feedly
First, design for data sharing https://t.co/AGNj9bIaSb @ELIXIREurope
RT @sleight82: Shouldn't this be what all disease research is like? @Sagebio https://t.co/5xGVF5RkuC https://t.co/cv5dMWPr5N
RT @NatureBiotech: First, design for #datasharing - @Sagebio https://t.co/6i9kxEq32D https://t.co/b7dYfsITy2
RT @NatureBiotech: First, design for #datasharing - @Sagebio https://t.co/6i9kxEq32D https://t.co/b7dYfsITy2
RT @sleight82: Shouldn't this be what all disease research is like? @Sagebio https://t.co/5xGVF5RkuC https://t.co/cv5dMWPr5N
RT @NatureBiotech: First, design for #datasharing - @Sagebio https://t.co/6i9kxEq32D https://t.co/b7dYfsITy2
RT @NatureBiotech: First, design for #datasharing - @Sagebio https://t.co/6i9kxEq32D https://t.co/b7dYfsITy2
RT @hmkyale: "First, design for sharing” says @wilbanks See #mPower app. https://t.co/y7wdwwCcXq HT @CWolinetzNIH https://t.co/vo1GpjIgoE
"First, design for sharing” says @wilbanks See #mPower app. https://t.co/y7wdwwCcXq HT @CWolinetzNIH https://t.co/vo1GpjIgoE
First, design for #datasharing NATURE BIOTECHNOLOGY | OPINION AND COMMENT #AgingData https://t.co/E2ofMMtbfI
RT @NatureBiotech: First, design for #datasharing - @Sagebio https://t.co/6i9kxEq32D https://t.co/b7dYfsITy2
Fantastic thinking from #sagebio re:ethics of #datasharing including a 'global entry' system for researcher qualifi…https://t.co/LcxI5lZUv4
RT @NatureBiotech: First, design for #datasharing - @Sagebio https://t.co/6i9kxEq32D https://t.co/b7dYfsITy2